Past Projects

Project WellCAST 3.0

We recruited caregivers of children with rare neurogenetic conditions to participate in Project WellCAST, a NIH-funded study that aims to promote caregiver well-being through interventions, resources, and peer support. All research activities were completed via telehealth. We are NOT currently recruiting for this project. Thank you for your interest!

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PANDABox

We recruited families to participate in a NIH-funded study of early development in 6-18 month old infants and toddlers with Angelman syndrome, Down syndrome, fragile X syndrome, and infants with no known developmental concerns. All research activities could be completed from home, or in lab if families were local. Activities included a series of online forms, a day-long recording of your child’s vocalizations, and a telehealth-based session in which a researcher would interact with the parent and their child in real time.

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PANDAbox Baby Sibling Extension

Consisted of families of 3-30 month old infants and toddlers with an older sibling diagnosed with autism spectrum disorder. Similar to the PANDAbox parent study, all research activities were completed from home and included a series of online forms, a day-long recording of the child’s vocalizations, and a telehealth-based session in which a researcher would interact with the parent and their child in real time.

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The Purdue Early Phenotype Study (PEPS)

The Early Phenotype Study (PEPS) is a remotely-administered prospective, longitudinal study of infants and young children. This study involves parents of infants and toddlers up to 2 years old with Angelman, fragile X, Prader-Willi, and Williams syndromes.

Learn more about PEPS

The Brain and Behavior Study (BABS)

Consisted of individuals with the FMR1 premutation to participate in a study looking at brain activity. Participation was completed through both in-person and web-based assessments, and participants are provided monetary compensation for their time and travels (participants must have been driving distance to Purdue).

Family Adaptations to COVID-19

This project is completed and no longer enrolling participants. Thank you to all who participated!